We are the combination of four hospitals: the General Hospital, the Children’s Hospital, the Women’s Hospital and the Traumatology, Rehabilitation and Burns Hospital. We are part of the Vall d’Hebron Barcelona Hospital Campus: a world-leading health park where healthcare plays a crucial role.
Below we will list the departments and units that form part of Vall d’Hebron Hospital and the main diseases that we treat. We will also make recommendations based on advice backed up by scientific evidence that has been shown to be effective in guaranteeing well-being and quality of life.
Vols saber com serà la teva estada a l’Hospital Universitari Vall d’Hebron? Aquí trobaràs tota la informació.
L’objectiu de la jornada és donar a conèixer i conscienciar sobre les malalties minoritàries de la mà de professionals, investigadors i pacients. Sovint són poc conegudes, també per als professionals de la medicina; per aquest motiu els pacients i les seves famílies han de passar per nombroses proves i especialistes, fins a tenir un diagnòstic.
Programa
09:30 h Benvinguda
09:35 h Presentació d'associacions
09:45 h Ponència Inaugural "Malalties Minoritàries: avançant tots junts’ a càrrec de la Dra. Mireia del Toro, servei de Neurologia Pediàtrica, cap de la Unitat de Malalties Metabòliques i presidenta de la Comissió de Malalties Minoritàries de l’Hospital Universitari Vall d’Hebron i investigadora del Grup de Recerca de Neurologia Pediàtrica del VHIR
10:00 h Taula Rodona ‘Avenços en l'atenció a les malalties minoritàries"
10:50 h Taula Rodona ‘Xerrades amb l’expert’
11:40 h Cloenda de la Jornada
Format: presencial (Sala d'Actes de la planta 10a de l'Hospital General) i en línia (en aquest enllaç)
Programa Malalties Minoritàries
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