We are the combination of four hospitals: the General Hospital, the Children’s Hospital, the Women’s Hospital and the Traumatology, Rehabilitation and Burns Hospital. We are part of the Vall d’Hebron Barcelona Hospital Campus: a world-leading health park where healthcare plays a crucial role.
Patients are the centre and the core of our system. We are professionals committed to quality care and our organizational structure breaks down the traditional boundaries between departments and professional groups, with an exclusive model of knowledge areas.
Would you like to know what your stay at Vall d'Hebron will be like? Here you will find all the information.
The commitment of Vall d'Hebron University Hospital to innovation allows us to be at the forefront of medicine, providing first class care adapted to the changing needs of each patient.
Programa Científic
8:30 Sessió inaugural 9:00 Maneig clínic de la malaltia de Fabry. Moderadors: M. del Toro & G. Pintos-MorellMiguel A. Torralba (Hospital Clínico, Zaragoza): Pathophysiology of Fabry disease: role of biomarkers and genetic variantsAlberto Ortiz (Fundación Jiménez Díaz, Madrid): Overview of consensus treatment and precission medicine approach in Fabry diseaseJames C. Moon (Barts Heart Centre, London, United Kingdom): Insights into early and advanced cardiomyopathy in Fabry disease from MRIMichael West (Dalhousie University, Halifax, Canada): What have we learned after 10 years of Canadian Fabry Disease Initiative (CFDI)?11:00 Cofee Break11.30 Noves estratègies terapèutiques per les malalties lisosòmiques. Moderadors: N. Ventosa & S. Schwartz Jr.Ibane Abasolo (CIBBIM-Nanomedicine): Nanomedicine in lysosomal disorders. Project Smart4FabryRoberto Giugliani (Porto Alegre, Brazil): Fusion proteins and other strategies to cross the Blood-Brain-Barrier (BBB).Michael West (Dalhousie University, Halifax, Canada). Gene therapy clinical trial for Fabry diseaseFàtima Bosch (CBATEG-UAB): Gene therapy approaches for Sanfilippo A and other lysosomal disorders13:30 Discussió general14:00 Lunch
Fòrum obert a pacients i professionals 15:00 Situació actual del tractament per les malalties lisosòmiques. Moderador: J. Torrent-FarnellVivències personals. Pacients, familiars i professionals de la sanitat conjuntament 18:00 Resum final, missatges per emportar, i comiat. Guillem Pintos-Morell
Més Informació: smart4fabry@smart4fabry.eu i minoritaries_VH@vhebron.net
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