We are the combination of four hospitals: the General Hospital, the Children’s Hospital, the Women’s Hospital and the Traumatology, Rehabilitation and Burns Hospital. We are part of the Vall d’Hebron Barcelona Hospital Campus: a world-leading health park where healthcare plays a crucial role.
Below we will list the departments and units that form part of Vall d’Hebron Hospital and the main diseases that we treat. We will also make recommendations based on advice backed up by scientific evidence that has been shown to be effective in guaranteeing well-being and quality of life.
Vols saber com serà la teva estada a l’Hospital Universitari Vall d’Hebron? Aquí trobaràs tota la informació.
Programa Científic
8:30 Sessió inaugural 9:00 Maneig clínic de la malaltia de Fabry. Moderadors: M. del Toro & G. Pintos-MorellMiguel A. Torralba (Hospital Clínico, Zaragoza): Pathophysiology of Fabry disease: role of biomarkers and genetic variantsAlberto Ortiz (Fundación Jiménez Díaz, Madrid): Overview of consensus treatment and precission medicine approach in Fabry diseaseJames C. Moon (Barts Heart Centre, London, United Kingdom): Insights into early and advanced cardiomyopathy in Fabry disease from MRIMichael West (Dalhousie University, Halifax, Canada): What have we learned after 10 years of Canadian Fabry Disease Initiative (CFDI)?11:00 Cofee Break11.30 Noves estratègies terapèutiques per les malalties lisosòmiques. Moderadors: N. Ventosa & S. Schwartz Jr.Ibane Abasolo (CIBBIM-Nanomedicine): Nanomedicine in lysosomal disorders. Project Smart4FabryRoberto Giugliani (Porto Alegre, Brazil): Fusion proteins and other strategies to cross the Blood-Brain-Barrier (BBB).Michael West (Dalhousie University, Halifax, Canada). Gene therapy clinical trial for Fabry diseaseFàtima Bosch (CBATEG-UAB): Gene therapy approaches for Sanfilippo A and other lysosomal disorders13:30 Discussió general14:00 Lunch
Fòrum obert a pacients i professionals 15:00 Situació actual del tractament per les malalties lisosòmiques. Moderador: J. Torrent-FarnellVivències personals. Pacients, familiars i professionals de la sanitat conjuntament 18:00 Resum final, missatges per emportar, i comiat. Guillem Pintos-Morell
Més Informació: smart4fabry@smart4fabry.eu i minoritaries_VH@vhebron.net
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